Petra's Healing Journey

I went in search of clarity today, unfortunately that’s not what I got.

I took the first two MRI reports with me to the hospital. The first one from April said 85mm and the second from 4 months later said 74mm (you probably know these measurements off by heart now!).

I sat down in my oncologists office and I got out the first two reports, ready to compare them with the third one. My oncologist didn’t have the physical report, just one on his computer screen. I asked to see it, to compare them but bizarrely, there were no measurements on it. All it said was that it was the same size it was the same as the previous report.

Either the protocol is to measure them it or it’s not.

Why measure it the first two times and not the third?

Do the radiologists just decide to measure them when they feel like it? Do they wake up in the morning and say to themselves, “Today I don’t feel like measuring”?!

It’s a hospital, there should be protocols.

‘The same’ is frankly not good enough.

If I’m deciding whether to have 8 hours of surgery to have my breast removed, I would like to make an informed decision.

As I walked away from the hospital I got more and more angry.

I called my oncologist and told him I want measurements.

He said he would email radiology immediately and get back to me.

In the meantime I’ve requested the MRI and the report to be sent out to me.

They say my DCIS is high grade, which means the cells are multiplying quickly. Yet it hasn’t grown in a year and a half. They’re obviously not multiplying THAT quickly then are they?

They told me if I didn’t have surgery it would be invasive in 6 months. They got that wrong.

So I said, my treatments are obviously preventing it spreading. He said no, he doesn’t think my treatments are doing anything.

If my treatments are doing nothing, and the cells are multiplying rapidly, why hasn’t it grown??

It makes no sense.

Either the treatments are working or the cells are not multiplying quickly.

Has to be one or the other

🤷‍♀️

Something isn’t adding up 🤔